Giants

3 weeks! Not exactly how new parents expect the first few weeks of parenthood to go, but we are figuring out our own kind of "normal" and embracing it together (you know, with all our extra family members being the doctors, nurses, surgeons, therapists, etc😉)

Giants Fall, a song by Francesca Battistelli hits home lately. The lyrics that really get me are these:

"We could really live like this
Can't you imagine it
So bold, so brave
With childlike faith
Miracles could happen
Mountains would start moving
So whatever you may face

Don't you be afraid
Of giants in your way
With God you know that anything's possible
So step into the fight
He's right there by your side
The stones inside your hand might be too small
But watch the giants fall"

❤️Right now we are encountering our own kind of "giants" in the form of congenital heart disease and all that it entails. Thanks to modern medicine, Margaret's condition was discovered early in our pregnancy and we were able to cope as anyone getting devastating news about their precious long-awaited miracle would. The unknown was terrifying and left a lot of unanswered questions and we got a lot of "we have to wait and see once the baby is here" from doctors. It was ugly at times but we focused on preparing to become parents and chose to continue to be excited and thankful and not let our fears get to us. 

This last week has been challenging. We have been in 3 different rooms in the last 3 days and found ourselves back in the ICU so Margaret could be monitored more closely due to some extra pain she seemed to be experiencing. It's like some of my initial fears from when we found out about Margaret's CHD come knocking at the door as if to say "you're not out of the woods yet, don't even think about getting comfortable." Thankfully the team agreed that she was telling us we were trying to push her too fast and moving her back to ICU has really benefited her. Slow and steady is the way to get this girl home! We think she just likes the extra attention 😉

It's weird to think that our 3-week-old daughter has had two heart surgeries already, has a pacemaker and more surgeries on the horizon. She is SO strong! 

Please continue to keep our family and the medical team in your prayers! 

We are not sure how we will ever show everyone how grateful we are for your support but we sure will be trying!