Heartbeat 5000

Today was a phenomenal day.  Our team was able to fundraise over $1,600 to be donated to the Cardiovascular unit at Children's!  Since this was the first year we have participated in this event, we were not entirely sure what it would be like.  Now that we've gone through it once, we are even more excited to participate every year.  We are very thankful that events like this exist and we are able to "give back" to the hospital that provides such critical care to many children and has become so important to our family.  Here are a few pictures from the day.  

Father's Day

Best.  Dad.  Ever.  

Feature on Children's website

Our family was picked to be a feature on the Children's MN website recently and had a photoshoot to get some nice pictures to go along with the post.  Direct link to the article can be found here although you can also access it by going to the Children's Hospital's main web page.  Pictures done by Lynsey Tjaden Photography.  

Heart Cath

Today was a big day!!! Margaret went in for her heart cath. She went in a little before 1pm and we were able to finally go back to see her around 5pm. Thankfully, she's been sleeping and keeping her body nice and still so the site where the catheter was put in can clot and heal.  🙏🏻Praying she remains calm through the evening! 

We are settled into our room in the CVCC for the evening and the plan is to monitor Margaret's sats and BP overnight. She will have an X-ray in the morning and then we should be heading home! 

We met with the cardiologist who did the heart cath and Margaret's primary cardiologist while waiting to see her. It sounds like there were no surprises by what was found and they got a lot of good information and we got an idea for what Margaret's medical future will look like. Intimidated? Yep, we are! But we have yet again been blown away by how well we are taken care of here at Children's. 

Next week, the whole team will go over Margaret's case and discuss timeline for open heart surgery. (If you saw me leading up to today, imagine the mess I'll be leading up to OHS!😳🙈). Bill and I agree that we are full of mixed emotions. We are nervous but looking forward to getting this initial OHS done. It will be a complicated surgery but we have a pretty fabulous surgeon and cardiology team taking care of our precious girl. 

Please keep our little lady in your thoughts and prayers. We are all gearing up for a busy next couple of months. Can you believe how strong these heart warrior babies are?! Amazing. All of them!