Wednesday, June 14, 2017

Heart Cath

Today was a big day!!! Margaret went in for her heart cath. She went in a little before 1pm and we were able to finally go back to see her around 5pm. Thankfully, she's been sleeping and keeping her body nice and still so the site where the catheter was put in can clot and heal.  🙏🏻Praying she remains calm through the evening! 
We are settled into our room in the CVCC for the evening and the plan is to monitor Margaret's sats and BP overnight. She will have an X-ray in the morning and then we should be heading home! 
We met with the cardiologist who did the heart cath and Margaret's primary cardiologist while waiting to see her. It sounds like there were no surprises by what was found and they got a lot of good information and we got an idea for what Margaret's medical future will look like. Intimidated? Yep, we are! But we have yet again been blown away by how well we are taken care of here at Children's. 
Next week, the whole team will go over Margaret's case and discuss timeline for open heart surgery. (If you saw me leading up to today, imagine the mess I'll be leading up to OHS!😳🙈). Bill and I agree that we are full of mixed emotions. We are nervous but looking forward to getting this initial OHS done. It will be a complicated surgery but we have a pretty fabulous surgeon and cardiology team taking care of our precious girl. 
Please keep our little lady in your thoughts and prayers. We are all gearing up for a busy next couple of months. Can you believe how strong these heart warrior babies are?! Amazing. All of them! 








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