Friday, January 20, 2017

Backwards

Backwards. That's how it feels we are moving. Margaret has had a few more arrhythmia episodes over the last few days. 2 were not a concern according to the doctors as they were very brief and something about the rhythm being ok, but one was similar to the one she had last weekend and she needed to have medical intervention to come out of it. Terrifying. Seeing your 2 week old intubated and so many doctors and nurses rushing around her in the room. Again. 
We were moved back to the intensive care area of the unit - backwards, literally down the hall and we have one of the rooms closest to the OR now. ☹️
The plan for now is for Margaret to have surgery on Monday and have a permanent pacemaker placed. 
Margaret's medical team all continue to be so amazing and we can really tell that they all love this little peanut and are trying so hard to figure out why she's having these episodes while putting her safety and well-being as the #1 priority. It's frustrating for them to see her like this, too. They want answers as bad as we do. 
She's proving time and time again that she's the one in charge and as badly as we want to bring her home, we need her to be healthy and safe before we do that. 
Keep praying for our little miracle. 

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