Wednesday, January 18, 2017

Status Change

Wow. Tomorrow my baby girl will be 2 weeks old! I cannot believe it! This little lady has been through so much and is such a trooper. 
We moved down the hall to a new room and bumped out of "intensive care" to "intermediate care"!!!' (This is huge!! ðŸŽ‰ Mom might have cried...)
The last few days have been exhausting and overwhelming for all of us. Margaret is recovering well from heart surgery and now we are working on getting her to eat...which is hard for Mom because she was such a good eater before surgery and seeing her struggle is hard. Margaret is struggling with eating because she can't quite balance breathing with swallowing milk. She has to work harder to get the same amount of oxygen as other babies. Slowly she is making progress, though. 
Today was a big day for us because Margaret got her nasal cannula taken off and hopefully it will stay off! Margaret had a NG feeding tube placed so we can make sure her tummy is getting full. It's a lot easier to work on eating by mouth if she doesn't feel super hungry. She continues to get nutrients and fats through her central line. 
It's amazing to me that this little peanut had heart surgery and has only been getting Tylenol for pain the last few days. She sure is tougher than I am!! I would be asking for much stronger meds! ðŸ˜œ
Keep praying, friends! We continue to be grateful and amazed by the kindness and generosity of everyone. 




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